Stirling
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Stirling urodziła się 10 grudnia 1996 w Honolulu na Hawajach. Latem 1996 roku byłam w ciąży z pierwszym dzieckiem. Byłem bardzo podekscytowany. Po 5 miesiącach zrobiliśmy ultra dźwięk i dowiedziałem się, że mam chłopca. Cóż za szczęśliwy moment dla nas! Jednak technik zachowywał się dziwnie i poprosił doktora o obejrzenie samych obrazów. Powiedzieli, że chcieliby, żebym wrócił po kolejne spojrzenie za kilka tygodni. Martwiłem się i nie mogłem sobie wyobrazić, co zobaczyli. Kiedy wróciłem, powiedzieli, że worek płynu w głowie mojego dziecka wygląda na duży i że chcieliby zaplanować amniopunkcję. Zrobiliśmy test po 7 miesiącach i czekaliśmy, co wydawało się wiecznością na wyniki testu. Okazuje się, że moja próbka musiała zostać wysłana do głównych Stanów Zjednoczonych, ponieważ nie udało się ustalić wyników tutaj, na Hawajach. W końcu powiedziano mi, że mój syn ma zespół Pallistera Killiana. Powiedziano mi, że jest to bardzo rzadkie i że większość dzieci nadal urodziła się lub umiera w ciągu pierwszego roku życia i dano mi możliwość późnej aborcji. Byliśmy zdruzgotani wiadomościami i długo o nich dyskutowaliśmy. Postanowiliśmy, że jeśli ten maluch będzie chciał żyć, damy mu na to każdą okazję i że będziemy go kochać bez względu na wszystko.
Więc kiedy nadszedł czas, mieliśmy około 10 lekarzy i kapelana na mojej sali porodowej, czekających na narodziny tego bardzo niezwykłego dziecka i udzielenie ostatniego namaszczenia, jeśli zajdzie taka potrzeba. Muszę przyznać, że było to bardzo przygnębiające. W ogóle nie byłem szczęśliwy. Po 26 godzinach porodu na świat przyszedł mój bystry synek, ale nie udało mi się go zobaczyć. Zabrali go natychmiast. Kilka godzin później dowiedziałem się, że żył. Bóg jest dobry! Kilka dni później w końcu zobaczyłem go na OIOM-ie. Był pod maską, ponieważ miał żółtaczkę i był karmiony przez rurkę. On był żywy! Wyglądał jak dziecko PKS-ów, miał szeroko rozstawione oczy i prześwitującą skórę. Jego nogi i ręce były bardzo krótkie i miał dziurę w miejscu jego kości ogonowej, ale był mój i płakałem, kiedy go trzymałem po raz pierwszy. Był tak bystry, że nazwałem go Stirling. Tak wyznacza naszą podróż.
Stirling przeważnie miała szczęśliwe, zdrowe dzieciństwo. W wieku 1 roku zdiagnozowano u niego ślepotę korową. To wydaje się przychodzić i odchodzić, więc on również nosi okulary. Ustalono, że od urodzenia był głuchy, ale od tego czasu ustalono, że słyszy głośne dźwięki i wysokie tony i używa ślimakowego aparatu słuchowego. Nigdy nie żuł swojego jedzenia, więc całe jego jedzenie było zawsze oczyszczone. Do dziś jest nietrzymany. Ataki zaczął mieć w wieku 3 lat. Zwichnął część bioder. Robi „żabą” rzecz. Myślę, że mu się to podoba! Więc miał 2 operacje do naprawy, ale nie trwały one długo, więc zrezygnowaliśmy z nich. Nie są warci bólu, jeśli mu nie przeszkadzają. Zajmuje się również baleriną stopami, więc przeszedł również 2 operacje, aby wydłużyć ścięgna Achillesa, aby pomóc w staniu. Miał wiele infekcji ucha, ponieważ jego kanały słuchowe są bardzo małe i co kilka lat zakłada się rurki. Przez lata miał wspaniałych nauczycieli i pomoce nauczycielskie. Zawsze był szczęśliwym chłopcem. Jako nastolatek miał wiele zapalenia płuc, miał tracheotomię, założono rurkę G i musiał być pod wpływem tlenu.
Stał się kruchy pod względem medycznym, ale zawsze jest uśmiechnięty i w dobrym nastroju. Jest kochany i wie o tym! Ma 2 braci w wieku 13 i 11 lat oraz młodszą siostrę w wieku 2 lat, z którymi regularnie informuje, kto jest szefem. W końcu jest starszym bratem.